Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium : Nature Genetics : Nature Publishing Group

Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium : Nature Genetics : Nature Publishing Group

Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium

• Yann Joly,
• Emilie de Vries-Seguin,
• Don Chalmers,
• B F Francis Ouellette,
• Joseph Yamada,
• Martin Bobrow
• & Bartha M Knoppers
• for the ICGC Data Access Compliance Office and the ICGC International Data Access Committee

• Affiliations
• Corresponding author

Nature Genetics

 

48,

 

224–225

 

(2016)

 

doi:10.1038/ng.3499

Published online

 

24 February 2016

Article tools

• Citation
• Reprints
• Rights & permissions
• Article metrics

To the Editor:

The broad sharing of data from large-scale genomics research and related initiatives has contributed significantly to advances in human genetic research. However, questions have been raised about whether these data sharing practices carry potential privacy risks for research participants¹. These concerns will likely become more acute in the…