lunes, 23 de febrero de 2015

Biobank research, informed consent and society. Towards a new allia... - PubMed - NCBI

Biobank research, informed consent and society. Towards a new allia... - PubMed - NCBI



 2015 Feb 10. pii: jech-2014-205215. doi: 10.1136/jech-2014-205215. [Epub ahead of print]

Biobank research, informed consent and society. Towards a new alliance?

Abstract

With the rise of -omics disciplines and biobank research, personal data and biosamples crossing national borders pose new ethical questions. In this article, informed consent, as originally conceived, is shown as not being sufficient to address aims of research and interests of patients any more. Therefore the author has, after having scrutinised issues in biobanking, sketched a model of dynamic consent and a manner of scrutinising ethical issues through empirical data.
Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.

KEYWORDS:

EMPOWERMENT PR; ETHICS; GENETICS; POLICY; Pharmacogenetics

PMID:
 
25669218
 
[PubMed - as supplied by publisher]

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