Charlie Gard, the 11-month-old terminally ill child whose case has dominated international headlines for months, has died in a London hospice after having life-support withdrawn.
On Thursday a British High Court judge ordered that the child be moved to an unspecified hospice, after no agreement on further treatment could be reached between the boy's parents and Great Ormond Street Hospital.
Gard’s parents had wanted Charlie to be kept alive until close to the 4th of August, which would have been his first birthday. But Gard’s court appointed guardian told the High Court that no hospice could provide care for intensively ventilated children for a long time, so the parents' wish to spend several days with him could not be fulfilled.Gard suffered from an extremely rare, inherited mitochondrial disease called encephalomyopathic mitochondrial DNA depletion syndrome. The typically fatal condition causes progressive muscle weakness, brain damage, and organ failure. His parents had sought to take Gard to the US for experimental nucleoside therapy, but the High Court ruled in April that it was in the child’s best interests to have life-support withdrawn.
| Saturday, July 29, 2017 | BioEdge
We're back! And although the northern hemisphere summer is normally a slow-news season, bioethics has been on the front page of world newspapers.
The drama of the dying British baby Charlie Gard, his loving parents, the doctors at Great Ormond Street hospital in central London, and the English law has captured the imagination of people everywhere.
To be honest, I am not sure whose "side" I should be on. Parents should normally make healthcare decisions for their children.
But there are cases in which their choices are plainly wrong -- as a Swedish doctor suggests below in his version of the mysterious resdignation syndrome among refugee children -- and the advice of doctors should be heeded.
Which was the case here? We'd love to hear from you.
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