Power to the People: Data Citizens in the Age of Precision Medicine

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From Genomics & Health Impact Scan Database

This database includes published scientific literature on evidence-based translation of genomic discoveries into improved health care and disease prevention that have a potential impact on population health.

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• Power to the People: Data Citizens in the Age of Precision Medicine.  
  Evans Barbara J et al. Vanderbilt journal of entertainment and technology law 2017 19(2) 243-265
• Ethics and Epistemology of Big Data.  
  Lipworth Wendy et al. Journal of bioethical inquiry 2017 Nov
• Expanding Access to Large-Scale Genomic Data While Promoting Privacy: A Game Theoretic Approach.  
  Wan Zhiyu et al. American journal of human genetics 2017 Jan
• Precision engagement: the PMI’s success will depend on more than genomes and big data  
  JK Wagner et al, Genetics in Medicine, October 27, 2016
• Balancing Benefits and Risks of Immortal Data: Participants' Views of Open Consent in the Personal Genome Project.  
  Zarate Oscar A et al. The Hastings Center report 2015 Dec

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