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EURORDIS - Rare Diseases Europe is currently recruiting for the following position:

Patient Voices Programme Manager (PVPM)

The main scope of the position includes the coordination of all activities related to the Patient Voices Programme. The aim of the Programme is to engage patients and patient organisations in health, research and social policy issues to better inform EURORDIS’ advocacy and policy-making activities through both qualitative and quantitative data collection methods. The PVPM will thus serve as the team’s in-house reference for the collection of data from patients and patient organisations.

The ideal candidate will be EMT or equivalent, have 3-5 years of relevant professional experience with direct experience in qualitative and quantitative collection of data.

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