Last Posted: Jun 22, 2017
- The dbGaP data browser: a new tool for browsing dbGaP controlled-access genomic data.
Wong Kira M et al. Nucleic acids research 2017 Jan 45(D1) D819-D826 - Empty rhetoric over data sharing slows science
(Editorial) Nature, Jun 15, 2017. - Data Sharing Statements for Clinical Trials: A Requirement of the International Committee of Medical Journal Editors.
Taichman Darren B et al. JAMA 2017 Jun - Reconciling evidence-based medicine and precision medicine in the era of big data: challenges and opportunities.
Beckmann Jacques S et al. Genome medicine 2016 8(1) 134 - Sharing data under the 21st Century Cures Act
MA Majumder et al, Genetics in Medicine, May 25, 2017 - From Rosalind Franklin to Barack Obama: Data Sharing Challenges and Solutions in Genomics and Personalised Medicine.
Lawler Mark et al. The New bioethics : a multidisciplinary journal of biotechnology and the body 2017 Apr 23(1) 64-73 - Sharing Clinical and Genomic Data on Cancer The Need for Global Solutions
The Clinical Cancer Genome Task Team of the Global Alliance for Genomics and Health, N Engl J Med May 25, 2017 - Application of Panel-Based Tests for Inherited Risk of Cancer.
Shah Payal D et al. Annual review of genomics and human genetics 2017 May - Myriad take two: Can genomic databases remain secret?
Christi J. Guerrini, et al, Science, May 12, 2017 - Open sharing of genomic data: Who does it and why?
Haeusermann Tobias et al. PloS one 2017 12(5) e0177158 - Massive-scale genomic data sharing to improve rare disease diagnosis
D MacArthur VIDEO presentation, Scripps Institute, Future of Genomic Medicine 2017 - Sharing Genome Data
C Wright, TGMI Blog Post, April 2017 - Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance.
Cook-Deegan Robert et al. Annual review of genomics and human genetics 2017 Apr - De-identified genomic data sharing: the research participant perspective.
Goodman Deborah et al. Journal of community genetics 2017 Apr - Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Sanderson Saskia C et al. American journal of human genetics 2017 Mar 100(3) 414-427 - A qualitative study of adolescents' understanding of biobanks and their attitudes toward participation, re-contact, and data sharing.
Murad Andrea M et al. American journal of medical genetics. Part A 2017 Apr 173(4) 930-937
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