Data Sharing :: Public Health Genomics Knowledge Base (v1.2)

Public Health Genomics Knowledge Base (v1.2)





Last Posted: Feb 02, 2017

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• Evolving health care through personal genomics.
  Rehm Heidi L et al. Nature reviews. Genetics 2017 Jan
• Ten Simple Rules to Enable Multi-site Collaborations through Data Sharing
  MR Boland et al, Plos Comp Biol, January 2017
• Ten Simple Rules to Enable Multi-site Collaborations through Data Sharing.
  Boland Mary Regina et al. PLoS computational biology 2017 Jan (1) e1005278
• An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health.
  Rahimzadeh Vasiliki et al. Biopreservation and biobanking 2016 Jun 14(3) 256-9
• Expanding Access to Large-Scale Genomic Data While Promoting Privacy: A Game Theoretic Approach.
  Wan Zhiyu et al. American journal of human genetics 2017 Jan
• Laboratory and clinical genomic data sharing is crucial to improving genetic health care: a position statement of the American College of Medical Genetics and Genomics.
  Acmg Board Of Directors et al. Genetics in medicine : official journal of the American College of Medical Genetics 2017 Jan
• Access policies in biobank research: what criteria do they include and how publicly available are they? A cross-sectional study.
  Langhof Holger et al. European journal of human genetics : EJHG 2016 Dec
• Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration.
   et al. Atherosclerosis. Supplements 2016 Dec
• Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.
  Smith Maureen E et al. BMC medical research methodology 2016 Nov 16(1) 162
• DATA SHARING AND REPRODUCIBLE CLINICAL GENETIC TESTING: SUCCESSES AND CHALLENGES.
  Yang Shan et al. Pacific Symposium on Biocomputing. Pacific Symposium on Biocomputing 2016 22166-176
• A survey of current practices for genomic sequencing test interpretation and reporting processes in US laboratories.
  O'Daniel Julianne M et al. Genetics in medicine : official journal of the American College of Medical Genetics 2016 Nov
• Harmonizing the interpretation of genetic variants across the world: the Malaysian experience.
  Hassan Nik Norliza Nik et al. BMC research notes 2016 Feb 9125
• 'IRDiRC Recognized Resources': a new mechanism to support scientists to conduct efficient, high-quality research for rare diseases.
  Lochmüller Hanns et al. European journal of human genetics : EJHG 2016 Oct
• The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues.
  Charlebois Kathleen et al. PloS one 2016 (10) e0164347
• Biospecimen Sharing Among Hispanic Women in a Safety-Net Clinic: Implications for the Precision Medicine Initiative.
  Nodora Jesse N et al. Journal of the National Cancer Institute 2017 Feb 109(2)
• Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States.
  Wang Shuang et al. Annals of the New York Academy of Sciences 2016 Sep

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