“Better Not to Know?”: Justifiable Limits on the Right to Information in the Realm of DTC GeneticTesting. An Analysis of the European and Spanish Legal Framework.

Abstract

The rapid advance of genetics increases the availability in the market of different genetic tests, which can be acquired directly by consumers without the intermediation of a healthcare professional. Both the European and the Spanish legal framework have restricted the access to these direct-to-consumer (DTC) genetic tests on the grounds of different reasons, such as the protection of consumers or the preservation of public health. The present article discusses these legal restrictions under the light of the right to information.