Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking

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From Genomics & Health Impact Scan Database

This database includes published scientific literature on evidence-based translation of genomic discoveries into improved health care and disease prevention that have a potential impact on population health.

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• Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking.  
  Joly Yann et al. PLoS ONE 2015 10(7) e0129893
• Family decision maker perspectives on the return of genetic results in biobanking research.  
  Siminoff Laura A et al. Genet. Med. 2015 Apr 9.
• The Impact of Commercialisation and Genetic Data Sharing Arrangements on Public Trust and the Intention to Participate in Biobank Research.  
  Critchley Christine et al. Public Health Genomics 2015 Mar 13.
• 'Cool! and creepy': engaging with college student stakeholders in Michigan's biobank.  
  Platt T, et al. Journal of community genetics 2014 10 (4) 4
• Characterization of statin dose response in electronic medical records.  
  Wei WQ, et al. Clinical pharmacology and therapeutics 2014 3 (3) 3

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