The Right Not to Know and the Duty to Tell: The Case of Relatives

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From Genomics & Health Impact Scan Database

This database includes published scientific literature on evidence-based translation of genomic discoveries into improved health care and disease prevention that have a potential impact on population health.

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• The Right Not to Know and the Duty to Tell: The Case of Relatives.  
  Juth Niklas et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2014 42(1) 38-52
• Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.  
  Holm Ingrid A et al. J Empir Res Hum Res Ethics 2015 Oct 10(4) 414-26
• Informed consent, and an ethico-legal framework for paediatric observational research and biobanking: the experience of an Italian birth cohort study.  
  Toccaceli Virgilia et al. Cell Tissue Bank 2014 Dec 15(4) 579-90
• Start me up: ways to encourage sharing of genomic information with research participants.  
  Angrist Misha et al. Nat. Rev. Genet. 2015 Jul 17. 16(8) 435-6
• The right to know and genetic testing.  
  Sheehan Mark et al. J Med Ethics 2015 Apr 41(4) 287-8

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