Informed Consent
Informed Consent in the Age of Next Generation Sequencing - February 4, 2015
National Human Genome Research Institute: Informed consent resources for genomics research![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_vtDSGMI-yEezW7P4xVGYYkjlbjLLdcDfSqDf3al8Q8qcsxBiogiQj8SslVDfzwez2cIM6UbpbkGJDzq1MNEd92BUmj0NVtjfabKOQqWNS3ENvRw7ClRekD=s0-d)
NHGRI updates online resource on informed consent for genomics research,
by Raymond MacDougall, Feb 4
Next-generation sequencing-based genome diagnostics across clinical genetics centers: implementation choices and their effects.![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_vtDSGMI-yEezW7P4xVGYYkjlbjLLdcDfSqDf3al8Q8qcsxBiogiQj8SslVDfzwez2cIM6UbpbkGJDzq1MNEd92BUmj0NVtjfabKOQqWNS3ENvRw7ClRekD=s0-d)
Vrijenhoek T, et al. Eur J Hum Genet. 2015 Jan 28.
Vrijenhoek T, et al. Eur J Hum Genet. 2015 Jan 28.
The emerging need for family-centric initiatives for obtaining consent in personal genome research.
Minari J, et al. Genome Med. 2014 Dec 17;6(12):118.
Minari J, et al. Genome Med. 2014 Dec 17;6(12):118.
NIH policy supports broader sharing of genomic data, strengthens informed-consent rules: Research participants must give consent for secondary sharing, even if data are de-identified.![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_vtDSGMI-yEezW7P4xVGYYkjlbjLLdcDfSqDf3al8Q8qcsxBiogiQj8SslVDfzwez2cIM6UbpbkGJDzq1MNEd92BUmj0NVtjfabKOQqWNS3ENvRw7ClRekD=s0-d)
Am J Med Genet A. 2015 Jan;167(1):viii-ix.
Am J Med Genet A. 2015 Jan;167(1):viii-ix.
Researchers' views on informed consent for return of secondary results in genomic research.![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_vtDSGMI-yEezW7P4xVGYYkjlbjLLdcDfSqDf3al8Q8qcsxBiogiQj8SslVDfzwez2cIM6UbpbkGJDzq1MNEd92BUmj0NVtjfabKOQqWNS3ENvRw7ClRekD=s0-d)
Appelbaum PS, et al. Genet Med. 2014 Dec 11.
Appelbaum PS, et al. Genet Med. 2014 Dec 11.
Genetic screening and testing in an episode-based payment model: preserving patient autonomy.
Sutherland S, et al. Obstet Gynecol. 2014 Nov;124(5):987-91
Sutherland S, et al. Obstet Gynecol. 2014 Nov;124(5):987-91
Testing an online, dynamic consent portal for large population biobank research.![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_vtDSGMI-yEezW7P4xVGYYkjlbjLLdcDfSqDf3al8Q8qcsxBiogiQj8SslVDfzwez2cIM6UbpbkGJDzq1MNEd92BUmj0NVtjfabKOQqWNS3ENvRw7ClRekD=s0-d)
Thiel DB, et al. Public Health Genomics. 2015;18(1):26-39. doi:
Thiel DB, et al. Public Health Genomics. 2015;18(1):26-39. doi:
Informed consent and ethical re-use of African genomic data.![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_vtDSGMI-yEezW7P4xVGYYkjlbjLLdcDfSqDf3al8Q8qcsxBiogiQj8SslVDfzwez2cIM6UbpbkGJDzq1MNEd92BUmj0NVtjfabKOQqWNS3ENvRw7ClRekD=s0-d)
Wright G, et al. Hum Genomics. 2014 Oct 22;8(1):18.
Wright G, et al. Hum Genomics. 2014 Oct 22;8(1):18.
Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients.![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_vtDSGMI-yEezW7P4xVGYYkjlbjLLdcDfSqDf3al8Q8qcsxBiogiQj8SslVDfzwez2cIM6UbpbkGJDzq1MNEd92BUmj0NVtjfabKOQqWNS3ENvRw7ClRekD=s0-d)
Scollon S, et al. Genome Med. 2014 Sep 17;6(9):69
Scollon S, et al. Genome Med. 2014 Sep 17;6(9):69
The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_vtDSGMI-yEezW7P4xVGYYkjlbjLLdcDfSqDf3al8Q8qcsxBiogiQj8SslVDfzwez2cIM6UbpbkGJDzq1MNEd92BUmj0NVtjfabKOQqWNS3ENvRw7ClRekD=s0-d)
Henderson Gail E et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2014 (3) 344-55
Henderson Gail E et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2014 (3) 344-55
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