NIH Request for Comment on Proposed Update to the NIH Genomic Data Sharing Policy’s Access Model for Genomic Summary Results

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Last Posted: Nov 30, 2017

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• NIH Request for Comment on Proposed Update to the NIH Genomic Data Sharing Policy’s Access Model for Genomic Summary Results  
• NIH Seeks Additional Comments on Genomic Data Sharing Policy,  
  Genome Web, November 28, 2017
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  NIH, Nov 6, 2017
• Considering the Benefits and Risks of Research Participants' Access to Sequence Data.  
  Haga Susanne B et al. Genetic testing and molecular biomarkers 2017 Oct
• Molecular Tumor Boards: Current Practice and Future Needs.  
  van der Velden D L et al. Annals of oncology : official journal of the European Society for Medical Oncology 2017 Sep
• Navigating social and ethical challenges of biobanking for human microbiome research.  
  Chuong Kim H et al. BMC medical ethics 2017 Jan 18(1) 1
• GA4GH Announces New Strategic Plan, Vision To Create Standards  
  Bio IT Word, Oct 17, 2017
• GA4GH Strikes Formal Collaborations with 15 International Genomic Data Initiatives  
  Global Alliance for Genomics and Health, Oct 15, 2017
• Care in Specialized Centers and Data Sharing Increase Agreement in Hypertrophic Cardiomyopathy Genetic Test Interpretation.  
  Furqan Aisha et al. Circulation. Cardiovascular genetics 2017 Oct 10(5)
• Response to “Proposal to Update Data Management of Genomic Summary Results Under the NIH Genomic Data Sharing Policy  
  D MacArthur, Broad Institute, Oct 10, 2017
• Twenty-First Century Precision Medicine in Oncology: Genomic Profiling in Patients With Cancer.  
  Borad Mitesh J et al. Mayo Clinic proceedings 2017 Oct 92(10) 1583-1591
• Sharing genetic information  
  N Rahman, TGMI Blog Post, Oct 6, 2017
• NIH seeks comment on proposal to update data management of genomic summary results  
  NIH, Sep 21, 2017
• Genomic medicine and data sharing.  
  Raza Sobia et al. British medical bulletin 2017 Sep 123(1) 35-45
• Impact of HIPAA's minimum necessary standard on genomic data sharing.  
  Evans Barbara J et al. Genetics in medicine : official journal of the American College of Medical Genetics 2017 Sep

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