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Last Posted: Mar 08, 2018

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• We need to reach a common understanding about real world data  
  L Annemans, BMJ Blog, Mar 6, 2018
• Enhancing Autonomy in Biobank Decisions: Too Much of a Good Thing?  
  Mitchell Phoebe B et al. Journal of empirical research on human research ethics : JERHRE 2018 Jan 1556264617753483
• Biospecimen Complexity-the Next Challenge for Cancer Research Biobanks?  
  Watson Peter H et al. Clinical cancer research : an official journal of the American Association for Cancer Research 2017 Feb 23(4) 894-898
• The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers.  
  Gainotti Sabina et al. European journal of human genetics : EJHG 2018 Feb
• The relevance of gene panels in movement disorders diagnosis: A lab perspective.  
  Reale Chiara et al. European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society 2018 Jan
• Planning Today for Tomorrow's Research: Analysis of Factors Influencing Participation in a Pediatric Cancer Research Biorepository.  
  Labib Rania M et al. Frontiers in oncology 2017 7324

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