Registries for Evaluating Patient Outcomes: A User’s Guide: 2nd Edition - Research Report - Final | AHRQ Effective Health Care Program

Research Report - Final – Sept. 27, 2010
Registries for Evaluating Patient Outcomes: A User’s Guide: 2nd Edition
The Agency for Healthcare Research and Quality (AHRQ) Effective Health Care (EHC) Program is pleased to announce that the handbook, Registries for Evaluating Patient Outcomes: A User’s Guide 2nd Edition has been released and is available for downloading from the Web site at:

http://www.effectivehealthcare.ahrq.gov/index.cfm/search-for-guides-reviews-and-reports/?pageaction=displayproduct&productID=531&govann=092710

Other Formats

* View PDF 2.3 MB
http://www.effectivehealthcare.ahrq.gov/ehc/products/74/531/Registries%202nd%20ed%20final%20to%20Eisenberg%209-15-10.pdf

Originally published in 2007, the handbook has been completely updated with four new sections addressing emerging topics in registry science:

. When To Stop a Registry; Use of Registries in Product Safety Assessment
.. Linking Registry Data
... Technical and Legal Considerations
.... Interfacing Registries and Electronic Health Records

Also, important updates have been made to existing chapters, including Principles of Registry Ethics, Data Ownership and Privacy, which now addresses recent developments affecting the privacy rule and new laws including the HITECH Act and the Genetic Nondiscrimination Act. The handbook also includes thirty-eight case studies examining real challenges in the development, use and analysis of registries.

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Registries for Evaluating Patient Outcomes: A User’s Guide: 2nd Edition - Research Report - Final | AHRQ Effective Health Care Program