Genomics|Update|Current: More on Personal Genomics: Consumer Empowerment & Oversight

Genomics|Update|Current

More on Personal Genomics: Consumer Empowerment & Oversight

What is direct-to-consumer genetic testing? From the NIH Genetics Home Reference

Empowering consumers through accurate genomic tests, Jeffrey Shuren, FDA Voice, Jun 26, 2014

Consumer information on DTC genetic tests, US Federal Trade Commission, Jan 7, 2014

CDC blog post: Think after you spit-personal genomics and the teachable moment (2012)

CDC paper: Scientific Foundation for Personal Genomics- recommendations from an NIH -CDC Workshop

Recent commentaries and insights

Changes on the horizon for consumer genomics in the EU
Louiza Kalokairinou et al. Science, October 17, 2014

Direct-to-consumer genetic testing: a case of potential harm, by Nancy Fliesler, Vector, May 5

Why genetic self-test kits should not be allowed into Canada, by Abby Lippman, Special to The Globe and Mail, Oct 16

Personal genomics in Greece: An overview of available direct-to-consumer genomic services and the relevant legal framework. 
Kechagia S, et al. Public Health Genomics 2014 Oct 1

Personal utility in genomic testing: is there such a thing? 
Bunnik EM, et al. J Med Ethics 2014 May

Gatekeepers or intermediaries? The  role of clinicians in commercial genomic testing. 
McGowan ML, et al. PLoS One. 2014 Sep 26;9(9):e108484

How a Wiki is keeping direct-to-consumer genetics alive, by Antonio Regalado, MIT Technology Review, Oct 19