July 2012 - Volume 50 - Issue : Medical Care
Electronic Health Records Help Researchers Harness Data
New initiatives funded by the American Recovery and Reinvestment Act and managed by AHRQ’s Effective Health Care Program are establishing how electronic health records connected to shared databases can be used by scientists to conduct comparative effectiveness research (CER). The Electronic Data Methods Forum was established to advance knowledge on use of electronic clinical data to conduct CER, improve quality, and develop clinical decision support systems. National experts commissioned by the Forum have authored articles featured in a special supplement of this month’s issue of Medical Care. Articles address the challenges of building infrastructure for CER with electronic clinical data. Obstacles and opportunities related to the three domains of analytic methods, clinical informatics, and data governance are highlighted. The analytic methods papers address challenges on how to assess data quality and approaches to developing cohorts for CER studies. The clinical informatics papers examine the capabilities and limitations of different informatics platforms to perform CER and practical considerations when using new clinical informatics approaches for CER. Articles on data governance address approaches to protect patients’ confidentiality and privacy and to facilitate multisite Institutional Review Board approval for CER. Select to learn more about these projects, visit the Electronic Data Methods Forum Web site. Select to access the free articles.
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Co-Editors-in-Chief
Medical Care. 50():i, July 2012.
doi: 10.1097/01.mlr.0000415793.54035.b2
Editorial
Electronic Data Methods (EDM) Forum Building the Infrastructure to Conduct Comparative Effectiveness Research and Patient-Centered Outcomes Research using Electronic Clinical Data
Medical Care. 50():ii, July 2012.
doi: 10.1097/01.mlr.0000415794.61659.51
Introduction
EDM Forum Supplement Overview
Medical Care. 50():S1-S2, July 2012.
doi: 10.1097/MLR.0b013e3182588ef7
Building Sustainable Multi-functional Prospective Electronic Clinical Data Systems
Medical Care. 50():S3-S6, July 2012.
doi: 10.1097/MLR.0b013e3182588ed1
The Electronic Data Methods (EDM) Forum for Comparative Effectiveness Research (CER)
Medical Care. 50():S7-S10, July 2012.
doi: 10.1097/MLR.0b013e318257a66b
Opportunities and Challenges for Comparative Effectiveness Research (CER) With Electronic Clinical Data: A Perspective From the EDM Forum
Medical Care. 50():S11-S18, July 2012.
doi: 10.1097/MLR.0b013e318258530f
Analytic Methods
Commentary: Electronic Health Records for Comparative Effectiveness Research
Medical Care. 50():S19-S20, July 2012.
doi: 10.1097/MLR.0b013e3182588ee4
A Pragmatic Framework for Single-site and Multisite Data Quality Assessment in Electronic Health Record-based Clinical Research
Medical Care. 50():S21-S29, July 2012.
doi: 10.1097/MLR.0b013e318257dd67
Diabetes and Asthma Case Identification, Validation, and Representativeness When Using Electronic Health Data to Construct Registries for Comparative Effectiveness and Epidemiologic Research
Medical Care. 50():S30-S35, July 2012.
doi: 10.1097/MLR.0b013e318259c011
Clinical Informatics
Commentary: Clinical Informatics
Medical Care. 50():S36-S37, July 2012.
doi: 10.1097/MLR.0b013e318257ddeb
Building the Informatics Infrastructure for Comparative Effectiveness Research (CER): A Review of the Literature
Medical Care. 50():S38-S48, July 2012.
doi: 10.1097/MLR.0b013e318259becd
A Survey of Informatics Platforms That Enable Distributed Comparative Effectiveness Research Using Multi-institutional Heterogenous Clinical Data
Medical Care. 50():S49-S59, July 2012.
doi: 10.1097/MLR.0b013e318259c02b
Data Model Considerations for Clinical Effectiveness Researchers
Medical Care. 50():S60-S67, July 2012.
doi: 10.1097/MLR.0b013e318259bff4
Research Data Collection Methods: From Paper to Tablet Computers
Medical Care. 50():S68-S73, July 2012.
doi: 10.1097/MLR.0b013e318259c1e7
Governance
Commentary: Protecting Human Subjects and Their Data in Multi-site Research
Medical Care. 50():S74-S76, July 2012.
doi: 10.1097/MLR.0b013e318257ddd8
Approaches to Facilitate Institutional Review Board Approval of Multicenter Research Studies
Medical Care. 50():S77-S81, July 2012.
doi: 10.1097/MLR.0b013e31825a76eb
Strategies for De-identification and Anonymization of Electronic Health Record Data for Use in Multicenter Research Studies
Medical Care. 50():S82-S101, July 2012.
doi: 10.1097/MLR.0b013e3182585355
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