Last Updated: Jan 07, 2016
- Changes to the Genetic Information Nondiscrimination Act Coming in 2016!
By Nicholas Beermann and Lisa McGlynn, JDSupra, December 31, 2015 - Center for Congenital and Inherited Disorders (CCID)
Disease: Birth defects; Type: General Information; State: Iowa - Public Health Genomics (Connecticut)
Disease: Multiple Diseases; Type: General Information; State: Connecticut - Genetic Evaluation and Testing for Hereditary Colorectal Cancer: What You Should Know
Disease: Lynch syndrome; Type: Education; State: Connecticut - Confidentiality & the Risk of Genetic Discrimination: What Surgeons Need to Know.
Gammon Amanda et al. Surg. Oncol. Clin. N. Am. 2015 Oct 24(4) 667-81 - Informed consent for biobanking: consensus-based guidelines for adequate comprehension.
Published on 2015 by Expert panel - Appropriateness of newborn screening for [alpha]1-antitrypsin deficiency.
Published on 2014 by Alpha-1 Foundation - Workshop Attendees - Military Health Care Dilemmas and Genetic Discrimination: A Family's Experience with Whole Exome Sequencing.
Helm Benjamin M et al. Narrat Inq Bioeth 2015 5(2) 179-86 - Appropriateness of newborn screening for á1-antitrypsin deficiency.
Published on 2014 by Alpha-1 Foundation - The Equal Employment Opportunity Commission Proposal and the Genetic Information Nondiscrimination Act.
Kerstein Brett et al. Genet Test Mol Biomarkers 2015 Jul 19(7) 345-346 - 'Devious Defecator' Case Tests Genetics Law
G Kolata, New York Times, May 29, 2015 - Demographic Differences in Willingness to Provide Broad and Narrow Consent for Biobank Research.
Ewing Altovise T et al. Biopreserv Biobank 2015 Mar 31.
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