sábado, 8 de febrero de 2014

Preventing Chronic Disease | Community-Led Cancer Action Councils in Queens, New York: Process Evaluation of an Innovative Partnership With the Queens Library System - CDC

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Preventing Chronic Disease | Community-Led Cancer Action Councils in Queens, New York: Process Evaluation of an Innovative Partnership With the Queens Library System - CDC



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Community-Led Cancer Action Councils in Queens, New York: Process Evaluation of an Innovative Partnership With the Queens Library System

Upal Basu Roy, PhD, MPH, MS; Tamara Michel, MPH; Alison Carpenter, MPH; David W. Lounsbury, PhD; Eilleen Sabino, MPH; Alexis Jurow Stevenson, MPH; Sarah Combs, MPH; Jasmine Jacobs, MPH; Deborah Padgett, PhD; Bruce D. Rapkin, PhD

Suggested citation for this article: Basu Roy U, Michel T, Carpenter A, Lounsbury DW, Sabino E, Stevenson AJ, et al. Community-Led Cancer Action Councils in Queens, New York: Process Evaluation of an Innovative Partnership With the Queens Library System. Prev Chronic Dis 2014;11:130176. DOI: http://dx.doi.org/10.5888/pcd11.130176External Web Site Icon.
PEER REVIEWED

Abstract

Introduction
Community-based participatory research (CBPR) has great potential to address cancer disparities, particularly in racially and ethnically diverse and underserved neighborhoods. The objective of this study was to conduct a process evaluation of an innovative academic–community partnership, Queens Library HealthLink, which aimed to reduce cancer disparities through neighborhood groups (Cancer Action Councils) that convened in public libraries in Queens, New York.
Methods
We used a mixed-methods approach to conduct 69 telephone survey interviews and 4 focus groups (15 participants) with Cancer Action Council members. We used 4 performance criteria to inform data collection: action or attention to sustainability, library support for the council, social cohesion and group leadership, and activity level. Focus group transcripts were independently coded and cross-checked for consensus until saturation was achieved.
Results
Members reported benefits and barriers to participation. Thirty-three original focus group transcript codes were organized into 8 main themes related to member experiences: 1) library as a needed resource, 2) library as a reputable and nondenominational institution, 3) value of library staff, 4) need for a HealthLink specialist, 5) generation of ideas and coordination of tasks, 6) participation challenges, 7) use of community connections, and 8) collaboration for sustainability.
Conclusion
In response to the process evaluation, Cancer Action Council members and HealthLink staff incorporated member suggestions to improve council sustainability. The councils merged to increase intercouncil collaboration, and institutional changes were made in funding to sustain a HealthLink specialist beyond the grant period.

Author Information

Corresponding Author: David W. Lounsbury, PhD, Assistant Professor, Department of Epidemiology and Population Health, Albert Einstein College of Medicine, 1300 Morris Park Ave, Belfer Building, Room 1312D, Bronx, NY 10461. Telephone: 718-920-5490. E-mail: david.lounsbury@einstein.yu.edu.
Author Affiliations: Upal Basu Roy, New York University School of Medicine, New York, New York; Tamara Michel, Jasmine Jacobs, Queens Library, Jamaica, New York; Alison Carpenter, Eilleen E. Sabino, Alexis Jurow Stevenson, Sarah Combs, Bruce D. Rapkin, Albert Einstein College of Medicine, Bronx, New York; Deborah Padgett, Silver School of Social Work, New York University, New York, New York.

References

  1. Chin MH, Walters A, Cook SC, Huang ES. Interventions to reduce racial and ethnic disparities in health care. Med Care Res Rev 2007;64(5 Suppl):7S–28S. CrossRefExternal Web Site Icon PubMedExternal Web Site Icon
  2. Viswanathan M, Ammerman A, Eng E. Community-based participatory research: assessing the evidence. Rockville (MD): Agency for Healthcare Research and Quality; 2004.
  3. Wallerstein N, Duran B. Community-based participatory research contributions to intervention research: the intersection of science and practice to improve health equity. Am J Public Health 2010;100(Suppl 1):S40–6. CrossRefExternal Web Site Icon PubMedExternal Web Site Icon
  4. Goytia EJ, Lounsbury DW, McCabe MS, Weiss E, Newcomer M, Nelson DJ, et al. Establishing a general medical outpatient clinic for cancer survivors in a public city hospital setting. J Gen Intern Med 2009;24(Suppl 2):S451–5. CrossRefExternal Web Site Icon PubMedExternal Web Site Icon
  5. Olson EC, Van Wye G, Kerker B, Thorpe L, Frieden TR. Take Care Rockaways. NYC community health profiles, second edition. 2006;38(42):1–16.
  6. Ries LAG, Eisner MP, Kosary CL, Hankey BF, Miller BA, Clegg L, et al, editors. SEER cancer statistics review, 1975–2000. Bethesda (MD): National Cancer Institute; 2003. http://seer.cancer.gov/csr/1975_2000. Accessed January 15, 2014.
  7. US Census Bureau. State and county QuickFacts 2012. http://quickfacts.census.gov/qfd/states/36/36081.html. Accessed October 1, 2012.
  8. Flaspohler P, Duffy J, Wandersman A, Stillman L, Maras M. Unpacking prevention capacity: an intersection of research-to-practice models and community-centered models. Am J Community Psychol 2008;41(3-4):182–96. CrossRefExternal Web Site Icon PubMedExternal Web Site Icon
  9. Foster-Fishman PG, Berkowitz SL, Lounsbury DW, Jacobson S, Allen NA. Building collaborative capacity in community coalitions: a review and integrative framework. Am J Community Psychol 2001;29(2):241–61. CrossRefExternal Web Site Icon PubMedExternal Web Site Icon
  10. Anderson EE, Solomon S, Heitman E, DuBois JM, Fisher CB, Kost RG, et al. Research ethics education for community-engaged research: a review and research agenda. J Empir Res Hum Res Ethics 2012;7(2):3–19. CrossRefExternal Web Site Icon PubMedExternal Web Site Icon
  11. Chen PG, Diaz N, Lucas G, Rosenthal MS. Dissemination of results in community-based participatory research. Am J Prev Med 2010;39(4):372–8.CrossRefExternal Web Site Icon PubMedExternal Web Site Icon
  12. el Ansari W. Educational partnerships for public health: do stakeholders perceive similar outcomes? J Public Health Manag Pract 2003;9(2):136–56.CrossRefExternal Web Site Icon PubMedExternal Web Site Icon
  13. Israel BA, Lantz PM, McGranaghan RJ, Kerr DL, Guzman JR. Detroit Community–Academic Urban Research Center: closed-ended survey questionnaire for board evaluation, 1996–2002. In: Israel BA, Eng E, Schultz AJ, Parker EA, editors. Methods in community-based participatory research for health. San Francisco (CA): Jossey-Bass; 2005. p. 430–3.
  14. Schulz AJ, Israel BA, Lantz P. Instrument for evaluating dimensions of group dynamics within community-based participatory research partnerships. Eval Program Plann 2003;26(3):249–62. CrossRefExternal Web Site Icon
  15. Weiss ES, Anderson RM, Lasker RD. Making the most of collaboration: exploring the relationship between partnership synergy and partnership functioning. Health Educ Behav 2002;29(6):683–98. CrossRefExternal Web Site Icon PubMedExternal Web Site Icon
  16. Hoepfl MC. Choosing qualitative research: a primer for technology education researchers. J Technol Educ 1997;9(1):47–63.
  17. Padgett DK, editor. Qualitative and mixed methods in public health. Thousand Oaks (CA): Sage; 2012.
  18. Mariotto AB, Yabroff KR, Shao Y, Feuer EJ, Brown ML. Projections of the cost of cancer care in the United States: 2010–2020. J Natl Cancer Inst 2011;103(2):117–28. CrossRefExternal Web Site Icon PubMedExternal Web Site Icon

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