Please join the Agency for Healthcare Research and Quality (AHRQ) on Thursday, July 23rd from 1-2 pm ET for a webinar focusing on the strengths and limitations of using existing data sources to address new research questions, in comparison to developing new, prospective patient registries.
- Christina Mack, Ph.D., M.S.P.H., Director, Epidemiology and Outcomes Research, Real-World & Late Phase Research, Quintiles
- Michelle B. Leavy, M.P.H., Manager, Health Policy, Real-World & Late Phase Research, Quintiles
In this webinar, Dr. Mack will review factors for deciding whether to use existing data sources or collect new data and issues to consider when selecting a data source, drawing on case studies to illustrate these points, including hybrid registries, retrospective observational studies, and others.
This webinar is part of a series hosted by the AHRQ Registry of Patient Registries (RoPR) project. The RoPR is a central, searchable database of patient registries that is integrated with ClinicalTrials.gov. In addition to providing information on existing registries, AHRQ is further developing the RoPR as a knowledge portal for patient registries, with work underway to add information on registry best practices drawn from the widely used AHRQ publication, Registries for Evaluating Patient Outcomes: A User’s Guide, a web-based discussion forum, and tools for supporting the development and use of standardized outcome measures.
To register for this webinar go to: https://quintilesconferencing.
webex.com/ quintilesconferencing/j.php? RGID= rf69b8edf7fe8a6951c980f6737e4e bda.
To access RoPR tools and resources on the EHC Program Web site, go to: http://www.
effectivehealthcare.ahrq.gov/ search-for-guides-reviews-and- reports/?pageaction= displayproduct&productID=1897.
Effective Health Care Program http://effectivehealthcare.
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