Last Updated: Apr 23, 2016
- Comprehension and Data-Sharing Behavior of Direct-To-Consumer Genetic Test Customers
SP McGrath, Public Health Genomics, April 2016 - A scoping study to explore the cost-effectiveness of next-generation sequencing compared with traditional genetic testing for the diagnosis of learning disabilities in children.
Beale Sophie et al. Health technology assessment (Winchester, England) 2015 Jun 19(46) 1-90 - Comprehension and Data-Sharing Behavior of Direct-To-Consumer Genetic Test Customers.
McGrath Scott P et al. Public health genomics 2016 Mar - Genetic Test Firm to Put Customers’ Data in Public Domain
A Pollack, New York Times, March 8, 2016 - Genomic data sharing: How much oversight is necessary
N. Kovalevskaya,·DNA Digest, February 23, 2016 - An open access pilot freely sharing cancer genomic data from participants in Texas.
Becnel Lauren B et al. Scientific data 2016 3160010 - International Charter of principles for sharing bio-specimens and data.
Published on 2015 by - Benefits of sharing
Nature editorial, February 10, 2016 - Can Data Sharing Become the Path of Least Resistance?
PLOS Medicine editorial, January 26, 2016 - Open Access Could Transform Drug Discovery: A Case Study of JQ1.
Arshad Zeeshaan et al. Expert opinion on drug discovery 2016 Jan - Open innovation in early drug discovery: roadmaps and roadblocks.
Reichman Melvin et al. Drug discovery today 2015 Dec - Biobanking and Privacy Laws in Australia.
Chalmers Don et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 703-13 - Data Sharing as Part of the Normal Scientific Process: A View from the Pharmaceutical Industry
P Vallance et al, PLOS Medicine, January 5, 2016 - Developing Global Norms for Sharing Data and Results during Public Health Emergencies
K Modjarrad et al, PLOS Medicine, January 5, 2016 - Controlled Access under Review: Improving the Governance of Genomic Data Access.
Shabani Mahsa et al. PLoS biology 2015 Dec (12) e1002339 - Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework.
Dove Edward S et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec (4) 675-89 - Balancing Benefits and Risks of Immortal Data: Participants' Views of Open Consent in the Personal Genome Project.
Zarate Oscar A et al. The Hastings Center report 2015 Dec - The Ohio Plan to Prevent Heart Disease and Stroke 2008-2012
Disease: Heart Disease|Stroke|Familial Hypercholesterolemia; Type: Data|Policy|Program; State: Ohio - Data sharing to support UK clinical genetics and genomics services
PHG Foundation, December 16, 2015 - Responsible, proportionate data sharing for better and safer genetic services
S Raza et al, PHG Foundation, December 16, 2015 - Responsible, proportionate data sharing for better and safer genetic services,
PHG Foundation, December 16, 2015 - Data sharing to support UK clinical genetics and genomics services,
PHG Foundation, December 16, 2015 - Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents.
Munung Nchangwi Syntia et al. Journal of medical ethics 2015 Dec - Principle of proportionality in genomic data sharing
Wright CF, et al. Nature Reviews Genetics (2015) November 23 - A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Garrison Nanibaa' A et al. Genetics in medicine : official journal of the American College of Medical Genetics 2015 Nov - A systematic literature review of individuals’ perspectives on broad consent and data sharing in the United States
NA Garrison et al, Genetics in Medicine, November 18, 2015 - Precision medicine ethics: selected issues and developments in next-generation sequencing, clinical oncology, and ethics.
Fiore Robin N et al. Current opinion in oncology 2015 Nov - AACR launches data-sharing project for cancer genomic research,
by Susan D. Hall, Fierce Health IT, November 9, 2015 - Privacy Risks from Genomic Data-Sharing Beacons.
Shringarpure Suyash S et al. American journal of human genetics 2015 Oct - BRCA 1/2 Surveillance in Michigan, 2008-2012[PDF 772.97 KB]
Disease: Breast Cancer|Ovarian Cancer; Type: Data|Program; State: Michigan
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