Ethics, Policy and Law

Ethics, Policy and Law

Request for information: Input on the draft NIH genomic data sharing policy
German Ethics Council on genetic diagnostics: trend setting?
Buechner B Eur J Hum Genet 2013 Oct
Participants' recall and understanding of genomic research and large-scale data sharing
Robinson JO, et al. J Empir Res Hum Res Ethics 2013 Oct;8(4):42-52
Should we fear DNA testing? DNA sequencing is here to stay. The implications for global health are mind-blowing, yet many worry about privacy concerns, Emma Keller, The Guardian, Nov 3
FDA helping to advance treatments tailored to you  [PDF 227.67 KB], FDA Consumer Health Information, Oct 2013

Preparing for personalised medicine in the US, PHG Foundation, Nov 5

Paving the way for personalized medicine: FDA’s role in a new era of medical product development  [PDF 854.45 KB]

Personalized Medicine: The Future is Now, FDA Voice, Nov 1

Judge invalidates patent for a Down syndrome test, by Andrew Pollack, New York Times, Oct   
Genethics articles update, Genethics.ca, Nov