Preventing Chronic Disease | Community-Led Cancer Action Councils in Queens, New York: Process Evaluation of an Innovative Partnership With the Queens Library System - CDC
Community-Led Cancer Action Councils in Queens, New York: Process Evaluation of an Innovative Partnership With the Queens Library System
Upal Basu Roy, PhD, MPH, MS; Tamara Michel, MPH; Alison Carpenter, MPH; David W. Lounsbury, PhD; Eilleen Sabino, MPH; Alexis Jurow Stevenson, MPH; Sarah Combs, MPH; Jasmine Jacobs, MPH; Deborah Padgett, PhD; Bruce D. Rapkin, PhD
Suggested citation for this article: Basu Roy U, Michel T, Carpenter A, Lounsbury DW, Sabino E, Stevenson AJ, et al. Community-Led Cancer Action Councils in Queens, New York: Process Evaluation of an Innovative Partnership With the Queens Library System. Prev Chronic Dis 2014;11:130176. DOI: http://dx.doi.org/10.5888/pcd11.130176
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Abstract
Introduction
Community-based participatory research (CBPR) has great potential to address cancer disparities, particularly in racially and ethnically diverse and underserved neighborhoods. The objective of this study was to conduct a process evaluation of an innovative academic–community partnership, Queens Library HealthLink, which aimed to reduce cancer disparities through neighborhood groups (Cancer Action Councils) that convened in public libraries in Queens, New York.
Community-based participatory research (CBPR) has great potential to address cancer disparities, particularly in racially and ethnically diverse and underserved neighborhoods. The objective of this study was to conduct a process evaluation of an innovative academic–community partnership, Queens Library HealthLink, which aimed to reduce cancer disparities through neighborhood groups (Cancer Action Councils) that convened in public libraries in Queens, New York.
Methods
We used a mixed-methods approach to conduct 69 telephone survey interviews and 4 focus groups (15 participants) with Cancer Action Council members. We used 4 performance criteria to inform data collection: action or attention to sustainability, library support for the council, social cohesion and group leadership, and activity level. Focus group transcripts were independently coded and cross-checked for consensus until saturation was achieved.
We used a mixed-methods approach to conduct 69 telephone survey interviews and 4 focus groups (15 participants) with Cancer Action Council members. We used 4 performance criteria to inform data collection: action or attention to sustainability, library support for the council, social cohesion and group leadership, and activity level. Focus group transcripts were independently coded and cross-checked for consensus until saturation was achieved.
Results
Members reported benefits and barriers to participation. Thirty-three original focus group transcript codes were organized into 8 main themes related to member experiences: 1) library as a needed resource, 2) library as a reputable and nondenominational institution, 3) value of library staff, 4) need for a HealthLink specialist, 5) generation of ideas and coordination of tasks, 6) participation challenges, 7) use of community connections, and 8) collaboration for sustainability.
Members reported benefits and barriers to participation. Thirty-three original focus group transcript codes were organized into 8 main themes related to member experiences: 1) library as a needed resource, 2) library as a reputable and nondenominational institution, 3) value of library staff, 4) need for a HealthLink specialist, 5) generation of ideas and coordination of tasks, 6) participation challenges, 7) use of community connections, and 8) collaboration for sustainability.
Conclusion
In response to the process evaluation, Cancer Action Council members and HealthLink staff incorporated member suggestions to improve council sustainability. The councils merged to increase intercouncil collaboration, and institutional changes were made in funding to sustain a HealthLink specialist beyond the grant period.
In response to the process evaluation, Cancer Action Council members and HealthLink staff incorporated member suggestions to improve council sustainability. The councils merged to increase intercouncil collaboration, and institutional changes were made in funding to sustain a HealthLink specialist beyond the grant period.
Author Information
Corresponding Author: David W. Lounsbury, PhD, Assistant Professor, Department of Epidemiology and Population Health, Albert Einstein College of Medicine, 1300 Morris Park Ave, Belfer Building, Room 1312D, Bronx, NY 10461. Telephone: 718-920-5490. E-mail: david.lounsbury@einstein.yu.edu.
Author Affiliations: Upal Basu Roy, New York University School of Medicine, New York, New York; Tamara Michel, Jasmine Jacobs, Queens Library, Jamaica, New York; Alison Carpenter, Eilleen E. Sabino, Alexis Jurow Stevenson, Sarah Combs, Bruce D. Rapkin, Albert Einstein College of Medicine, Bronx, New York; Deborah Padgett, Silver School of Social Work, New York University, New York, New York.
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