The following have been posted to the EHC Program Web site:
The following draft chapter, from the forthcoming publication, Registries for Evaluating Patient Outcomes: A User’s Guide: 3rd Edition, is open for comment until October 8, 2013.
Principles of Registry Ethics, Data Ownership, and Privacy. To access and comment, visit: http://effectivehealthcare.ahrq.gov/search-for-guides-reviews-and-reports/?pageaction=displayProduct&productID=1700&ECem=130911.
Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks. To access the paper, visit: http://www.effectivehealthcare.ahrq.gov/index.cfm/tools-and-resources/how-to-get-involved-in-the-effective-health-care-program/#patientsandconsumers.
Effective Health Care Program