From From Genomics & Health Impact Scan Database
This database includes published scientific literature on evidence-based translation of genomic discoveries into improved health care and disease prevention that have a potential impact on population health.
- Massive-scale genomic data sharing to improve rare disease diagnosis
D MacArthur VIDEO presentation, Scripps Institute, Future of Genomic Medicine 2017
- Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance.
Cook-Deegan Robert et al. Annual review of genomics and human genetics 2017 Apr
- De-identified genomic data sharing: the research participant perspective.
Goodman Deborah et al. Journal of community genetics 2017 Apr
- Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Sanderson Saskia C et al. American journal of human genetics 2017 Mar 100(3) 414-427
- Ethical Legal and Social Issues of Biobanking: Past, Present, and Future.
Bledsoe Marianna J et al. Biopreservation and biobanking 2017 Apr