Genomics|Features|Data Sharing

Genomics|Features|Data Sharing

Data Sharing

Data Sharing: Genomics & Precision Medicine - August 11, 2015

NIH Genomic Data Sharing (GDS) Policy 

Proposed Ebola biobank would strengthen African science, by Erika Check Hayden, Nature News, Aug 10

Data, privacy, and the greater good
Horvitz E et al. Science, July 17, 2015

Fair shares and sharing fairly: A survey of public views on open science, informed consent and participatory research in biobanking.
Joly Y et al. PLoS ONE 2015 (7) e0129893

Start me up: ways to encourage sharing of genomic information with research participants
Angrist M, Nature Reviews Genetics, July 17, 2015

Funders must encourage scientists to share, by Martin Borbrow, Nature News, June 10

Thank you for sharing
Initiatives to make genetic and medical data publicly available could improve diagnostics ? but they lose value if they do not share with other projects. Nature Editorial, April 28, 2015

Genomic data sharing? Ethical and scientific imperative
Kolchgova M DNA Digest, April 8, 2015

Shared resources, shared costs-leveraging biocuration resources.
Orchard S et al. Database (Oxford) 2015

From the principles of genomic data sharing to the practices of data access committees.
Shabani M et al. EMBO Mol Med 2015 Mar 9.

Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.
Husedzinovic A et al. Eur. J. Hum. Genet. 2015 Mar 4.

Development of data representation standards by the human proteome organization proteomics standards initiative.
Deutsch EW et al. J Am Med Inform Assoc 2015 Feb 28.

NIH's genomic data sharing policy: timing and tradeoffs.
Contreras J L et al. Trends Genet. 2015 Feb (2) 55-7

Does policy grow on trees?
Knoppers BM et al. BMC Med Ethics 2014 87

More on Genomic Data Sharing: Recent Insights - October 9, 2014

NIH issues finalized policy on genomic data sharing. Policy's implementation is key to accelerating biomedical discoveries, NIH News, Aug 27

Data use under the NIH GWAS data sharing policy and future directions
Dina N Paltoo, et al. Nature, August 27, 2014

NIH data sharing policies

A global alliance for sharing genomic and clinical data (2014)

The need to redefine genomic data sharing: A focus on data accessibility 
Tempest van Schaik, et al. Applied and Translational Genomics, September 2014

Distributing the future: The weak justifications for keeping human genomic databases secret and the challenges and opportunities in reverse engineering them. 
Misha Angrist and Robert Cook-Deegan. Applied and Translational Genomics, September 2014

Unpublished genomic data–how to share?
Shreeya Nanda and Maria K Kowalczuk BMC Genomics (2014)

A special series on genomics data sharing in genome medicine

A human rights approach to an international code of conduct for genomic and clinical data sharing
Knoppers B, et al. Hum Genet 2014 Feb 16