Genomics|Update|Current: Ethics, Policy & Law

Genomics|Update|Current

Ethics, Policy & Law

Attitudes of non-African American focus group participants toward return of results from exome and whole genome sequencing 
Yu JH, et al. Am J Med Genet A 2014 May

ESHRE Task Force on Ethics and Law 21: genetic screening of gamete donors: ethical issues 
Dondorp W, et al. Hum Reprod 2014 May

Public preferences for the return of research results in genetic research: a conjoint analysis 
Murphy Bollinger J, et al. Genet Med 2014 May

Return of genomic results to research participants: The floor, the ceiling, and the choices in between
Jarvik G, et al. Am J Hum Genet. 2014 May 7. pii: S0002-9297(14)00181-5.

Committee members suggest guidelines for returning sequencing results to research participants, Genome Web, May 21 [by free subscription only]

The Genetic Information Nondiscrimination Act: a federal law that protects individuals from genetic discrimination in health insurance and employment, Information from Genetic Alliance 

Statement by the NIH Director on the IOM report addressing the role of the Recombinant DNA Advisory Committee in oversight of clinical gene transfer protocols, NIH, May 22

NIH will no longer require special review for U.S. gene therapy trials, Science, May 22

Regulating direct-to-consumer genetic testing vs. the right to know, Synapse, May 22

Anniversary of the Genetic Information Nondiscrimination Act, Council for Responsible Genetics, May 21, 2014