Trans-NIH Workshop to Explore the Ethical, Legal and Social Implications (ELSI) of Citizen Science
January 13-14, 2015
Watch it live here, Jan. 13th at 8:30 a.m. Eastern | Follow on Twitter: #CitSciELSI
Purpose: Citizen Science is an approach to research that involves the public directly in the research process itself as partners and collaborators. The purpose of this workshop is to identify the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the National Institutes of Health (NIH) to address these ELSI issues.
The term "biomedical" is used in the broadest sense to include a wide range of research related to the NIH mission: biological, biomedical, behavioral, social, environmental and clinical studies that relate to understanding health and disease.
NIH Citizen Science ELSI Subgroup Workshop (Meeting Planners): Charlisse Caga-anan (NCI), Dave Kaufman (NHGRI), Katrina Theisz (NCI), Steven Becker (NEI), Elaine Collier (NCATS), Jennifer Couch (NCI), Leslie Derr (OD), Symma Finn (NIEHS), Elizabeth Gillanders (NCI), Megan Kinnane (NIMH), Jean McEwen (NHGRI), Gabriel Rosenfeld (NIAID), Amanda Vogel (NCI) and Carol Weil (NCI).
- To identify prominent ELSI issues associated with various types of Citizen Science research projects (for consideration by NIH policymakers and for use by investigators leading such projects).
- To identify gaps in ELSI research on Citizen Science relevant to NIH's mission.
- To plan for continued, expanded engagement of Citizen Science and bioethics communities to further develop criteria and guidance for NIH Citizen Science research activities.