'It is an entrustment': Broad consent for genomic research and biobanks in Sub-Saharan Africa

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Last Posted: Oct 26, 2017

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• 'It is an entrustment': Broad consent for genomic research and biobanks in Sub-Saharan Africa.  
  Tindana Paulina et al. Developing world bioethics 2017 Oct
• High participation rate among 25 721 patients with broad age range in a hospital-based research project involving whole-genome sequencing - the Lausanne Institutional Biobank.  
  Bochud Murielle et al. Swiss medical weekly 2017 Oct 147w14528
• Navigating social and ethical challenges of biobanking for human microbiome research.  
  Chuong Kim H et al. BMC medical ethics 2017 Jan 18(1) 1
• Legal issues in governing genetic biobanks: the Italian framework as a case study for the implications for citizen's health through public-private initiatives.  
  Piciocchi Cinzia et al. Journal of community genetics 2017 Sep
• Reaching for the next branch on the biobank tree of knowledge  
  NJ Cox, Nature Genetics, August 30, 2017
• Transparency of Biobank Access in Canada: An Assessment of Industry Access and the Availability of Information on Access Policies and Resulting Research.  
  Gibson Shannon G et al. Journal of empirical research on human research ethics : JERHRE 2017 Aug 1556264617723137
• Do Public Involvement Activities in Biomedical Research and Innovation Recruit Representatively? A Systematic Qualitative Review.  
  Lander Jonas et al. Public health genomics 2016 19(4) 193-202
• Population-based biobank participants' preferences for receiving genetic test results.  
  Yamamoto Kayono et al. Journal of human genetics 2017 Aug
• Participants' Understanding of Informed Consent for Biobanking: A Systematic Review.  
  Eisenhauer Elizabeth R et al. Clinical nursing research 2017 Jul 1054773817722690
• Genetic data from half a million released for research  
  Medical research Council, UK, July 28, 2017
• Genes, cells, and biobanks: Yes, there’s still a consent problem  
  T Caulfield et al, PLOS Biology, July 25, 2017
• Biobanking-Budgets and the Role of Pathology Biobanks in Precision Medicine.  
  Andry Chris et al. Academic pathology 42374289517702924
• Genes, cells, and biobanks: Yes, there's still a consent problem.  
  Caulfield Timothy et al. PLoS biology 2017 Jul 15(7) e2002654
• Genome-wide genetic data on ~500,000 UK Biobank participants  
  C Bycroft et al. BioRxiV, July 20, 2017
• eHealth provides a novel opportunity to exploit the advantages of the Nordic countries in psychiatric genetic research, building on the public health care system, biobanks, and registries.  
  Andreassen Ole A et al. American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics 2017 Jul
• Harnessing Genomic Biobanks to Understand Obesity in Cardiometabolic Disease: Prospects and Pitfalls.  
  O'Donnell Christopher J et al. JAMA cardiology 2017 Jul

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