Taiwan Biobank: making cross-database convergence possible in the Big Data era. - PubMed - NCBI
Gigascience. 2017 Nov 15. doi: 10.1093/gigascience/gix110. [Epub ahead of print]
Taiwan Biobank: making cross-database convergence possible in the Big Data era.
Abstract
The Taiwan Biobank (TWB) is a biomedical research database of biopsy data from 200,000 participants. Access to this database has been granted to research communities taking part in the development of precision medicines; however, this has raised issues surrounding TWB's access to electronic medical records (EMR). The Personal Data Protection Act of Taiwan restricts access to EMR for purposes not covered by patients' original consent. This commentary explores possible legal solutions to help ensure that the access TWB has to EMR abides with legal obligations, and with governance frameworks associated with ethical, legal and social implications. We suggest utilizing "hash function" algorithms to create non-retrospective, anonymized data for the purpose of cross-transmission and/or linkage with EMR. © The Authors 2017. Published by Oxford University Press.
KEYWORDS:
Biobank; EMR; Linkage; Precision Medicine
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