miércoles, 10 de julio de 2013

RoPR - The Registry of Patient Registries

RoPR - The Registry of Patient Registries


Registry Holder Information

Learn More About AHRQ’s Registry of Patient Registries

AHRQ’s Registry of Patient Registries (RoPR) is accepting registrations for patient registries. Select to access more information on how to list your registry in the RoPR or select to register for a 1-hour informational webinar on July 23 at 11:00 a.m. ET. RoPR is a database of existing patient registries that was designed with extensive stakeholder participation to promote collaboration, reduce redundancy, and improve transparency in registry-based research. The webinar will introduce the RoPR system and provide step-by-step instructions on listing a registry. Launched in December, RoPR represents a major milestone in efforts to improve efficiency and transparency in registry research. Select to access more information about the rationale for the RoPR and the design process. Questions should be directed to the ROPR team at RoPR@ahrq.hhs.gov.

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