The Agency for Healthcare Research and Quality (AHRQ) has announced that the Registry of Patient Registries (RoPR) launched on December 1, 2012 and is now available online at https://patientregistry.ahrq.gov. Sponsored by AHRQ, the RoPR is a database of existing patient registries that was designed with extensive stakeholder participation to promote collaboration, reduce redundancy, and improve transparency in registry-based research.
RoPR Now Accepting Registrations
The RoPR is now accepting registrations for patient registries. For more information on how to list your registry in the RoPR, visit https://patientregistry.ahrq.gov/holderinfo/ or join our informational webinar.
A 1-hour informational RoPR webinar is scheduled for July 23, 2013 at 11:00 a.m. ET. The webinar will introduce the RoPR system and provide step-by-step instructions on listing a registry. To register for this webinar, visit: https://www1.gotomeeting.com/register/159106832.
More information about the rationale for the RoPR and the design process can be found at: http://effectivehealthcare.ahrq.gov/index.cfm/search-for-guides-reviews-and-reports/?productid=690&pageaction=displayproduct.
The launch of the RoPR represents a major milestone in efforts to improve efficiency and transparency in registry research. We would like to thank all of the stakeholders who participated in the RoPR design activities over the past two years for their valuable feedback and support. Should you have any questions about the RoPR, please contact the ROPR team at RoPR@ahrq.hhs.gov.
The Effective Health Care Program