aportes a la gestión necesaria para la sustentabilidad de la SALUD PÚBLICA como figura esencial de los servicios sociales básicos para la sociedad humana, para la familia y para la persona como individuo que participa de la vida ciudadana.
lunes, 13 de mayo de 2013
Experiences and attitudes of genome investigators regarding return of individual genetic test results : Genetics in Medicine : Nature Publishing Group
Whether and how to return individual genetic results to study participants is among the most contentious policy issues in contemporary genomic research.
Methods:
We surveyed corresponding authors of genome-wide association studies, identified through the National Human Genome Research Institute’s Catalog of Published Genome-Wide Association Studies, to describe the experiences and attitudes of these stakeholders.
Results:
Of 357 corresponding authors, 200 (56%) responded. One hundred twenty-six (63%) had been responsible for primary data and sample collection, whereas 74 (37%) had performed secondary analyses. Only 7 (4%) had returned individual results within their index genome-wide association studies. Most (69%) believed that return of results to individual participants was warranted under at least some circumstances. Most respondents identified a desire to benefit participants’ health (63%) and respect for participants’ desire for information (57%) as major motivations for returning results. Most also identified uncertain clinical utility (76%), the possibility that participants will misunderstand results (74%), the potential for emotional harm (61%), the need to ensure access to trained clinicians (59%), and the potential for loss of confidentiality (51%) as major barriers to return of results.
Conclusion:
Investigators have limited experience returning individual results from genome-scale research, yet most are motivated to do so in at least some circumstances.
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