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EURORDIS - Rare Diseases Europe is currently recruiting for positions in Paris, Brussels and Barcelona:

Paris

Research Infrastructure Projects Manager (RIPM)

The main scope of the post includes the management of the RD Connect project. Additional responsibilities include representing EURORDIS in several pre-clinical research consortia such as the European Platform for Rare Disease Registries. A few such consortia and networks are described below. Additional responsibilities to represent EURORDIS in similar pre-clinical research networks may be progressively added

The ideal candidate will have 3-5 years of relevant professional experience in a European or international academic environment, preferably in the non-profit, humanitarian or health sectors.

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Deadline for submissions: 25/06/ 2015

Location:
EURORDIS Headquarters Paris:
Plateforme Maladies Rares, 96 rue Didot, Paris 75014, France.

If you are interested in applying for this position, please send your letter of motivation and CV in English to adsg-707074@cvmail.com

Patient Engagement Manager (PEM)

The ideal candidate will have a minimum of 4 years education in science, biology, pharmacy, medicine, and an experience in an international environment in the health sector.

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Deadline for submissions: 25/06/ 2015

Location:
EURORDIS Headquarters Paris:
Plateforme Maladies Rares, 96 rue Didot, Paris 75014, France.

If you are interested in applying for this position, please send your letter of motivation and CV in English to adsg-483050@cvmail.com

Brussels

European and International Public Affairs Specialist

EURORDIS is looking for an experienced public affairs professional who will enable the organisation to increase its influence on EU policies and programmes on behalf of people living with rare diseases in Europe, to promote rare diseases as a priority, in order to improve the situation of patients living with rare diseases.

The ideal candidate will have a minimum 10 years of experience, including some experience with either European institutions or public health policy and institutions

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Deadline for submissions: 25/06/ 2015

Location:
EURORDIS Brussels
Avenue Louise 149/24

If you are interested in applying for this position, please send your letter of motivation and CV in English to recruit20152@eurordis.org

Barcelona

Web Technology Manager

RareConnect.org is an online social network for patients and families to connect with one another to support and share vital experiences on aspects of living with a rare disease as well as for rare disease advocates to connect and work together. The Web Technology Manager will form part of a team of three Community Managers and a Project Lead and will be responsible for supporting the technical growth and stability of the platform. RareConnect is built on top of a combination of Open and Closed Source software and has ambitions to incorporate further innovative technologies.

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Deadline for submissions: 19/06/ 2015

Location:
EURORDIS Barcelona’s Office, C/0 Fundació Salut i Envelliment, UAB Casa Convalescencia, St; Antoni Maria Claret, 171, 08041 Barcelona, Spain

Applicants are requested to apply for this position here:http://eurordis.workable.com/jobs/65541

Page created: 01/09/2011
Page last updated: 04/06/2015

EURORDIS - The Voice of Rare Disease Patients in Europe