miércoles, 15 de mayo de 2013

Rare Disease Policy | www.eurordis.org

Rare Disease Policy | www.eurordis.org

Eurordis, Rare Diseases EuropeThe voice of rare disease patients in Europe

Rare Disease Policy

EURORDIS is at the centre of the regulatory process. Our contribution has been key in adopting important rare disease and orphan drug legislation at the European level, such as the EU Regulation on Orphan Drugs, Paediatric Drugs and Advanced Therapies.
By partnering with national alliance for rare diseases in several countries, we also influence the national process and push for the adoption and implementation of national plans or strategies for rare diseases in every country in Europe.

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